On January 12th, I shared my book review for Thyroid Healing by Anthony William and I also shared my story about how I’ve struggled with anxiety and autoimmune disease. If you haven’t seen the original post and would like to read it, you can find it HERE.
On February 23rd, I shared my first update. You can find it HERE.
Today is August 2nd, 2018 and I’ve been on the protocol now for 7 months. I haven’t strayed at all and I’ve remained obedient with my supplements and my foods. Here’s what I’m doing now:
- I’m drinking celery juice nearly every day with only occasional breaks.
- I haven’t had gluten, pork, eggs, canola, or any of the other problematic foods mentioned in the book. I’ve had occasional organic corn, but very rare and in small amounts.
- I’ve used many of the recipes from all three books by Anthony William.
- I’m still taking the Hawaiian spirulina, liquid zinc, evening primrose oil, L-lysine, and all of my other usual supplements including olive leaf extract and selenium.
- I have a tiny piece of real licorice every day or so.
- I’m using my essential oils on a daily basis, including lavender and vetiver for anxiety, peppermint for occasional headaches.
After being lowered down to 175mcg of medication, just after 6 weeks, my labs were perfect. My TSH was .71 and my free T4 was 1.77. Just 3-4 weeks later, they started to drop and I became symptomatic. I was having heart palpitations pretty much every time I would lie down and some throughout the day as well. When I went in to see my practitioner in May, my labs weren’t looking so good.
TSH – 5.25 | FT4 1.80
She instantly wanted to increase my medication back up to 200mcg again, which I thought was asinine. She knew I was previously hyperthyroid on that dose and so I begged her to go with 188mcg instead to be safe, but her ego took over. I knew if she increased me I’d be hyperthyroid again in a matter of a few weeks. Being my own patient advocate, thank God, I decided to abandon her plan and I went back to my endocrinologist early July. My TSH was now 3.91 and my FT4 still 1.80. He agreed that an increase might not be a good idea because I seemed to be adjusting slowly and my FT4 was still high. So, here I am now, still on the 175mcg with a few symptoms. He doesn’t want to see me until November, but I think I’ll go back in late September to be sure my TSH is back up where it belongs. The one thing I did do was switch back to name brand Synthroid.
On and off, I’ve had palpitations, including one very scary event. In the book, Anthony William blames the Epstein Barr virus for the palpitations. Now, since last year, I’ve had an increase in arrhythmia’s, but to be fair, I have a congenital heart defect which needs to be checked on once a year. Since I hadn’t been to my cardiologist since 2015, I went this week and now have to wear a 30-day heart monitor and have an echo-cardiogram as well. This will tell my doctor if the defect has changed and if it’s causing the palpitations. My thyroid honestly hasn’t been correct since before last year and I think it’s a good chance that it’s the thyroid disease and not my heart, at least I’m hopeful. I don’t want to have to take heart medications or have this thing fixed, but I’m going to have to do what I have to do, regardless.
I’ve noticed that I seem to have issues if I try to go more than 1 day without morning celery juice, which I think is strange. I’ve had some vertigo and other weird symptoms when trying to stop the celery juice. My plan was to take a few weeks off, but something tells me whatever virus I have in my body is being knocked down by the daily celery juice. Seems nuts, right? With that said, my mom who also has thyroid disease has been following this protocol (loosely) and she has had vertigo multiple times and it’s lasted up to a week for her. It’s made her quite miserable. She hasn’t been drinking the celery juice at all and has just worked to remove the problematic foods. She also hasn’t taken any of the recommended supplements. The celery juice seems to be extremely important.
The anxiety has been on and off through the roof, mainly because whenever I have heart issues, it causes me to get a little worked up, not only that, I think my adrenals are trying to kick in and help out a bit. When I first started taking Synthroid in 2006, all my heart problems started and led the doctors to discover my heart defect in the first place. Although at that time they stated that the palpitations were more than likely from the Hashimoto’s thyroid disease. I’ve been working on this for many years and here I am again practicing cognitive behavioral therapy because my body wants to go into full blown panic mode. This is the hardest part because I have to remind myself that I’m NOT in control and control is an issue for me. I’m working on it.
I have to also mention the possibility of my iron levels causing my thyroid labs to appear hypo. I was eating a bowl of gluten-free cheerios nearly every morning and didn’t realize they were so high in iron!
Oops! I totally forgot that you aren’t supposed to take iron within 4 hours of Synthroid and I was doing this nearly every morning. So, just two cups of these cheerios contains 100% of the iron you are supposed to eat in one day. That doesn’t even include the rest of the iron I was eating, especially from my dark chocolate which also contains 45% in one serving, plus the supplement I was taking earlier. My iron in May was just over the borderline and flagged as high, so I’ve taken a break from the morning cheerios and dark chocolate for now. My endocrinologist agreed that this could be part of the problem.
I’ll do another update in September after I see my endocrinologist again to update on the situation. By then, I’ll have my heart testing back. I’m hopeful I can stay on the 175mcg pills, but I just don’t know if my thyroid is ever going to function again. I don’t know if it’s healing or not, I mean, it’s really damaged. I’m hopeful, but I don’t know. It’s mentioned in the book that it can take years for someone like me who’s been on thyroid medications for so many years. I suppose if I could sit down with Anthony William, he could clue me in on some of these questions that I have. I haven’t tried to contact him yet, but I see that he may be available on Twitter and I might try that.
Regardless whether or not my thyroid ever functions again, I will never go back to the problematic foods, especially gluten. For the most part–outside of the heart issues I’ve been having–I’ve felt okay with just a little fatigue. I know I’m more susceptible to anxiety when my thyroid is off so, there are many pieces to the puzzle here. By now, I had hoped to be lowered on my medication again and on the road to recovery. I had hoped to have a more positive update for you all as well, but this is what’s happening. This is ME though and not you. Everyone has their own unique situations. Don’t lose hope if you’re doing this protocol!
*I’ll be taking break from blogging over the next month. I’ll try to post occasionally, but with the school year starting and everything else, I’m in dire need of a break. I hope to keep up on everyone’s posts. *